Saturday, October 31, 2009
There's A New Sheriff In Town
Happily created by Unknown at 10:09 PM 6 comments
Thursday, October 29, 2009
Eli's Elusive Laugh - VIDEO
I FINALLY GOT IT ON VIDEO!!!!!
It's my absolute favorite sound in the whole wide world!
(The ocean has been moved to second place.)
Happily created by Unknown at 1:49 PM 8 comments
Monday, October 26, 2009
Reflux Revisited
Eli is struggling with reflux, again. Well, he always has....but...
Last year in November 2008 started a four month journey through h#!! with him being so sick we ended up driving 2 1/2 hours to the ER at Seattle Children's Hospital to try and get it figured out.
Finally, in March of 2009 we got him on a new formula, new feeding plan, and started giving him Ativan to help his body stay calm.
We had the best Spring and Summer ever! But all good things come to an end I guess. :(
Then the reflux showed back up again about 2 weeks ago. His body starts arching, and twisting and contorting into shapes that aren't normal for him or anyone for that matter! He can't relax to go to sleep, and it's awful to watch.
We are working with our doctors to try and figure out what to do next. Looks like we might be changing to a G-J Feeding tube.
It's emotional exhausting to see him in so much pain. It's mentally exhausting to try and figure out what we need to know to make good decisions for him. It's physically exhausting because he is hard to hold.
I just don't have a lot of energy right now....and blogging has taken a back burner. I'll be back as soon as I feel up to it again! Thanks for stopping by :)
Happily created by Unknown at 6:13 PM 4 comments
Labels: Eli pics, medical update
Wednesday, October 21, 2009
The Coat Arrived....And It's Going Back!
Anyway - the winners of my contest, for guessing the correct color, ORANGE, are:
My dear local friend from MOPS: Nicole!
And because my sister and I are so generous....we are giving a pair to the only other person who guessed right, my dear bloggy friend: Katy, from Bird on the Street.
So, Girls - tell me YOUR favorite color and email me your address at: 3berks (at) fairpoint(dot) net and you'll get a fabulous pair of homemade earrings from my sister Shiela at From Shi's Garden.
Thanks for playing along!!!
Happily created by Unknown at 5:48 PM 4 comments
Labels: Give-Aways
Sunday, October 18, 2009
Dressing Up
His Second Halloween, I donned his Giraffe costume (gift from a friend) and we went to lunch at Olive Garden with my two friends and their kids....Elmo and a Kitty Cat.
Last year, Eli's Fourth Halloween, he had Swim Therapy that day. So, we dressed him up in his Pirate costume and I got to show him around the Therapy Center. He wore his costume for about 30 minutes. That's why I won't pay more than about $5 for a costume!
Happily created by Unknown at 1:58 PM 2 comments
Saturday, October 17, 2009
Sunday, October 11, 2009
Catching Up...and a Give-away!
Happily created by Unknown at 6:13 PM 6 comments
Labels: Eli pics, family pics
Wednesday, October 7, 2009
Bathing - Leckey vs. Otter
Bathing has always been hard, but as Eli gets bigger and stronger it's getting worse. He wants to roll over and drown himself, and I get a little freaked out at the idea!
We are now trying to decide if we should get a bath chair. I was thinking of the Otter Bath Seat - as it's less expensive, and seems to have enough straps to keep him safe:
Of course, for last night's bath, I came up with a fabulous new way to prop his head up so it's out of the water, so even if he does get his face to the side it won't end up in water! Now we might not need a chair for a while longer....we'll see how it goes for a few more baths.
We are thinking having this big chair to deal with in our bathtub might be a bit of a pain in the 'you know what'.
ANYONE HAVE ANY ADVICE?
Happily created by Unknown at 7:25 AM 5 comments
Labels: Adaptive Equip.