Blessing Number One:
The forecast on Snoqualmie pass was calling for 3" of snow.
It was sunny and beautiful!
Blessing Number Two:
We stopped in North Bend to get Eli out of his carseat, and he fell asleep in my lap.
Blessing Number Three:
Eli did awesome with all the waiting around we had to do yesterday. Was even a bit of a cuddle bug at times. Even through the pain, he's a happy and good boy!
Blessing Number Four:
I caught this face on camera! :)
Blessing Number Five:
I got some snuggle time with my boy.
Blessing Number Six:
Seattle Children's Hospital
We have had nothing but wonderful doctors and nurses attend to us there!
This is the Interventional Radiology room where the tube was placed.
See the two blue rings on top of the table? Those are the head and foot of the 'papoose board'.
(It wasn't quite long enough and added a little extra complication.)
I was holding Eli's arms up and shoulders down with the help of an X-ray Tech, while Lonnie was holding his legs down. There were two doctors placing the tube.
It took 20 minutes.
It was the loooongest 20 minutes I can remember since his birth!
But, it was successful and we are home and feeding him through it. Turns out you have to vent their stomach often because the air can't escape into the bowels as well anymore. Once we got that figured out, he was more comfortable this morning!
SO, WE WENT FROM THIS:
An AMT Mini-ONE Balloon Button (the lowest profile on the market)
(We always keep the extension attached because we use it every 30 minutes to feed him. We used to cover it with an Ace Bandage.)
The Mic-KEY G-J Feeding Tube. It's a monster on his skinny tummy!!!!!
This summer after his Stoma Infection, we started covering it all with Spandage. (It helps it breathe easier)
We were worried about how comfortable it would be for him to sleep with this big new button, because he sleeps on his tummy....but he slept through the night....and even slept in a little bit! :)
We're not seeing a total transformation in him yet, but we are forever hope-full!