Eli is struggling with reflux, again. Well, he always has....but...
Last year in November 2008 started a four month journey through h#!! with him being so sick we ended up driving 2 1/2 hours to the ER at Seattle Children's Hospital to try and get it figured out.
Finally, in March of 2009 we got him on a new formula, new feeding plan, and started giving him Ativan to help his body stay calm.
We had the best Spring and Summer ever! But all good things come to an end I guess. :(
Then the reflux showed back up again about 2 weeks ago. His body starts arching, and twisting and contorting into shapes that aren't normal for him or anyone for that matter! He can't relax to go to sleep, and it's awful to watch.
We are working with our doctors to try and figure out what to do next. Looks like we might be changing to a G-J Feeding tube.
It's emotional exhausting to see him in so much pain. It's mentally exhausting to try and figure out what we need to know to make good decisions for him. It's physically exhausting because he is hard to hold.
I just don't have a lot of energy right now....and blogging has taken a back burner. I'll be back as soon as I feel up to it again! Thanks for stopping by :)